LBDA

September 2017 Lewy Digest

Timothy Braggs: Caregiving as a Millennial

Timothy was a dedicated U.S. Postal Service employee climbing the ladder and becoming one of the youngest postmasters at 28-that is until his mother's Lewy body dementia (LBD) diagnosis in 2013. It was then that Timothy, a 33-year-old millennial, knew that everything would change.

His mother initially noticed something was wrong when she started exhibiting tremors. She visited her primary care physician, who thought it was Parkinson’s disease. She soon started experiencing hallucinations and sleep issues. Timothy felt it was time to get to the root of these problems. Appointments were made and eventually her psychologist, psychiatrist and neurologist determined it was LBD.

With the diagnosis, Timothy stepped up and became a caregiver. He moved his mother in to live with him and he hired caregiver assistants while he was at work or running errands. He put his career on pause, and sacrificed opportunities for advancement, to remain at a lower position with the USPS so he could balance his work life with his caregiving duties. His duties include scheduling her medical appointments, ensuring she takes her medication and supplements, taking care of her hygiene, going for early morning walks to keep his mother active, planning weekly outings to his veteran father’s grave, and more. 

Caregiving is an act of love regardless of age, and Timothy is proof of that.

Read more here.

Volunteer Spotlight: Nancy Martin

“I became a caregiver to my husband in 2013 and shortly after I made the decision that I wanted to become more involved in helping others in my community. Eventually, I became a volunteer Co-Facilitator for the Aiken, SC support group."

"Volunteering has helped me to get more information and resources as I go along this journey with my husband. It has also given me a new focus. I am able to help people that don’t know what to do and are feeling overwhelmed. In our support group, we encourage humor and joy despite what else might be going on at home. Through my role as a support group facilitator I have learned that giving back does more for you than the person receiving the help."

New Diagnostic Criteria

The diagnostic criteria for dementia with Lewy bodies (DLB) now allows healthcare providers the ability to diagnose the disorder based on their patients' individualized clinical presentation and biomarkers profile.

Read Professional Brief: New DLB Diagnostic Criteria by clicking here.

Awareness Month

October is LBD Awareness Month, and with the falling leaves comes your opportunity to make a difference by hosting an event, sharing LBD news through social media, submitting a brief awareness video, and more.

Click the link above to get involved today!